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Rabu, 27 Juli 2011

Robbed of hope, the cancer victims being ignored by profit-hungry drug firms

At the age of just 21, Alex Lewis knew time was running out for him. Three years into a losing battle with bone cancer, he was determined to pack as much as possible into what time he had left.
In between bouts of gruelling treatments there were trips to Australia and New  Zealand, an active social life and — one of his favourite pursuits — whizzing around the Oxfordshire countryside in his sports car.
‘Alex loved life,’ says his mother Angela, 52. ‘But his one sadness was that because of his cancer he would never have another long-term relationship or get married.’
Tragic love: Alex and Ali were married days before he died from bone cancer
Tragic love: Alex and Ali were married days before he died from bone cancer
One night in June last year that all changed. At a party, Alex was reunited with Ali Strain, a student from Birmingham whom he’d met while travelling in Australia. They kissed and, against all the odds, Alex’s dream came true.

Schoolgirl, 17, so worried about detention after sneaking out of school to buy food she collapsed with a HEART ATTACK

A sixth former was so distraught about being given her first detention that she collapsed and had a heart attack.
Tabatha McElligott, then 17, was caught by a teacher after sneaking out of school with friends to buy chocolate.
And her fear caused an undiagnosed rare heart condition to kick in.
Teachers dialled 999 and an emergency first aider arrived at Westcliff High School for Girls in Essex within three minutes.
He was able to restart her heart in the playground with a defibrillator before an ambulance arrived.
Doctors discovered that Miss McElligott, from Leigh-on-Sea, was born with ‘anomalous left coronary artery from the pulmonary artery’, which could have killed her at any time. The congenital condition causes her body to pump blood around her heart the wrong way.
Only 10 per cent of sufferers survive if they are not diagnosed by their first birthday.
‘I’d never really been in trouble at school, so I was mortified when we started getting shouted at and my heart obviously couldn’t cope with it,’ she said yesterday.
‘I felt my legs turning to jelly, and then everything went black.
‘I know now my heart was a ticking timebomb  waiting to go off.
‘In a strange way, I’m actually incredibly lucky I had a heart attack when I got shouted at. There was someone there who could help me.
‘I could easily have been left brain damaged or even dead if my heart had stopped for longer.’
After open heart surgery, she is now able to lead a normal life, simply taking beta blockers daily to slow her heart rate and aspirin to thin her blood.
Now 19, she has even trained as an emergency first aider to help others.
She added: ‘Since recovering, I have trained as an emergency responder, so I can carry my own defibrillator and be first on the scene if an emergency happens near me.
‘I’ve now made it my mission to ensure all young people are taught CPR, and as many as possible train to become emergency responders. It might just save a life.’
Nurse Cathy Ross, of the British Heart Foundation, said: ‘Most people with this condition are diagnosed at birth, so it’s incredibly rare to survive until your teenage years without knowing about it.
‘This young lady was very lucky that a community responder was on hand so quickly and shows just how important it is for ordinary people to know basic life support skills in case of an emergency.’
Her hero: Tabatha with paramedic Steve Hockley who restarted her heart in the school playground
Lucky escape: The schoolgirl's condition causes her body to pump blood around her heart the wrong wa
Her hero: Tabatha with paramedic Steve Hockley who restarted her heart in the school playground. She still bears a severe scar from the incident
Miss McElligott and her friend Catherine Newton left the school grounds during a free lesson in July last year.
When they came back from a local supermarket, a fire alarm had been triggered and staff were taking a roll call.

ANOMALOUS LEFT CORONARY ARTERY FROM THE PULMONARY ARTERY (ALCAPA)


Cathy Ross, senior cardiac nurse at the British Heart Foundation, said: 'ALCAPA is a very rare condition some people are born with where the left coronary artery that usually carries oxygen-rich blood from the aorta to a large portion of the heart muscle, is connected to the pulmonary artery instead.
'The pulmonary artery carries deoxygenated blood meaning the left side of the heart receives much less oxygen than it needs to be able function properly often resulting in a heart attack or leading to heart failure.

'Most people with this condition are diagnosed at birth, so it's incredibly rare to survive until your teenage years without knowing about it.'

‘We never thought anyone would miss us. We were on the way back to school when we heard the fire bell ringing and we ran back,’ said Tabatha, from Leigh-on-Sea.
‘When we got to the gates I could hear my teacher calling my name and my heart started hammering.
‘She began to tell us off but my heart just kept beating harder and harder and her voice sounded really distant.
‘I felt my legs turning to jelly and then everything went black.’

A trained emergency responder arrived within three minutes and saved the schoolgirl’s life before she was taken to Southend Hospital.
She was later transferred to The Heart Hospital at University College London, where experts diagnosed the condition.

‘I was stunned when I was told I’d had a heart attack – I was only 17,’ said Tabitha.
‘In my mind, heart attacks were something that overweight middle-aged men worried about – not something that happened to active teenagers like me.’
The British Heart Foundation does not keep statistics on the occurrence of ALCAPA in the general population but described it as ‘very rare’.
Panic: Tabatha McElligott was so 'mortified' at being scolded for sneaking out that she felt her 'legs turn to jelly' and she collapsed
Panic: Tabatha McElligott was so 'mortified' at being scolded for sneaking out that she felt her 'legs turn to jelly' and she collapsed

Can eating worms banish asthma? Scientists discover common diseases are linked to being too clean...

Could the cure to a wide range of modern epidemics such as diabetes, Crohn’s disease, asthma and heart attacks, lie in swallowing parasitic worms and letting them live in our stomachs?
Rob Dunn, an eminent professor of biology, believes our healthy future lies in what he calls ‘re-wilding our bodies’. In a new book, he urges us all to adopt a radical approach to the ‘hygiene hypothesis’.

I lost an ear through addiction to the sun: Doctors amputate to save nurse's life

From 14 years old, Sue Riddell was using tanning salons four times a week and sunbathing up to 15 hours a day, without protecting her ears.
When she noticed a tiny scab on her right ear, she first blamed it on her hair straighteners.

Overweight patients 'dying because NHS is poorly prepared for obesity epidemic'

Overweight patients have died or suffered lasting harm because the NHS is ‘poorly prepared’ to deal with the rise in obesity, a report warns.
It reveals that some obese patients have been the victims of surgical errors and poor assessment of their needs, as well as a lack of staff and equipment to care for them safely.
Bigger trolleys, beds and wheelchairs are needed – with more than half of women and almost two-thirds of men likely to be obese by 2050, according to official estimates.
Epidemic: More staff and better training are essential as obese patients can be unintentionally harmed during surgery
Epidemic: More staff and better training are essential as obese patients can be unintentionally harmed during surgery
More staff and better training are essential as obese patients can be unintentionally harmed during surgery and may be prescribed insufficient drugs because their weight is not being taken into account, says a report published online in the Postgraduate Medical Journal, which is based on data reported to the National Patient Safety Agency.

 

Doctors from Central Manchester University Hospitals analysed all incident reports relating to obesity over a period of three years from 2005 to 2008 to identify any common themes.
Altogether, 555 patient safety incidents were reported, of which 389 related to obesity, including 148 incidents related to its assessment, diagnosis or treatment.
Warning: The NHS is 'poorly prepared' to deal with the rise in obesity
Warning: The NHS is 'poorly prepared' to deal with the rise in obesity
More than one in ten incidents was classified as causing moderate harm to obese patients, with four suffering severe harm and three dying.
Around 63 incidents were associated with anaesthesia, such as difficulty in being able to ventilate a patient or clear their airway, with some patients being deprived of oxygen as a result.
There were 27 incidents involving critical care, most of which were pressure sores, while surgical errors included haemorrhage, unintended damage to organs surrounding the operation site and deep vein thrombosis.
Most incidents involved equipment not being able to take the weight of obese patients, with specially adapted apparatus either not available or normal equipment not working properly under the circumstances.
In 27 instances there were too few staff available to move an obese patient safely.
Lead researcher Dr John Moore said: ‘The occurrence of incidents resulting in severe harm or death highlights the specific dangers associated with the care of the obese patient.
‘Further planning and development of operation policies is needed to ensure the safe delivery of healthcare to patients.’

 

Do I have to give up tea for my prostate?

Fifteen years ago I underwent an operation for an enlarged prostate; since then it has grown again and my doctor has put me on medication — tamsulosin.
I’m 82 and my father died of prostate cancer. My doctor says not to worry, but do you think I should have regular check-ups?
I was also told not to have tea, coffee or chocolate. Could you tell me why? I have always been a big tea drinker and find it hard not to have the odd cup.
D. Redmond, Telford, Shropshire.
Drink but don't go mad: Tea and coffee can act as a diuretic
Drink but don't go mad: Tea and coffee can act as a diuretic
This is an unfortunate position in which you find yourself: unable to enjoy a cup of tea, worried that you may develop prostate cancer like your father, and no clear route forwards to settle your mind.
The condition from which you have suffered, and for which you underwent surgery, is benign prostatic hypertrophy.
This is a common complaint as men age; the prostate gland gradually enlarges throughout life, in much the same way as you lose the hair on your head, and for similar reasons — something to do with responses to male hormones.
The gland sits beneath the bladder and is wrapped around the urethra, the tube that is the exit pipe from the bladder. As the gland increases in size, it inevitably narrows this pipe as well as distorting the shape of the base of the bladder, all of which has at least some effect on urinary function.
The severity of symptoms varies from man to man, with many experiencing very few. However, if they do arise they are usually increased frequency of urination, getting up to go several times a night, poor stream, or the symptom of urgency — if you’ve got to go, you’ve got to go.
No doubt the operation you had was a transurethral resection, in which excess prostate tissue is removed by a keyhole technique to open up a good channel for flow. However, as you have experienced, the prostate can re-grow.
The most important point I can make is that benign prostatic hypertrophy is not a risk factor for prostate cancer.
Your condition occurs mainly in the central zone of the prostate gland, whereas cancers tend to arise in the outer part.
Your doctor has chosen tamsulosin as treatment, one of a group of medicines that work by relaxing smooth muscle in the prostate, which eases some of the symptoms.
The important side-effect of tamsulosin is a lowering of blood pressure — the walls of arteries are made of similar ‘smooth’ muscle — and this can cause faintness when you stand up suddenly.
See your doctor once a year and request the examination of your prostate.
There is an emerging view that senior gentlemen such as yourself are being screened too frequently and, as yet, that there is little or no evidence of benefit from having check-ups more than once a year — though I accept it is hard to take that caution on board with your father’s history.
And so to the issue of your beloved cuppa. The reason you have been advised to stop having tea and coffee goes hand in hand with advice to avoid drinking anything near to bedtime.
The drinks act as mild diuretics and can make the symptoms slightly worse.
However, I urge you to conduct an experiment. For a week or two have a couple of cups of tea each day, and compare this with a couple of weeks where you had none at all. You may find that it makes little or no difference, in which case, enjoy your tea!
After consuming some margarita cocktails on holiday a few years ago my mouth swelled up on the left hand side, making it hard to talk.
Once I got home, every time I ate or drank anything with lemon, lime or orange ingredients the same thing would happen. Since then this has gathered legs — I react to wine vinegar, balsamic vinegar, pineapples and kiwis — and the list is growing.
Can you help or recommend anything for this condition?
Susan Weaver, by email
This sounds to me like oral allergy syndrome. In this condition fruits containing pips — such as oranges, lemons, apples and many others — will rapidly cause itching, burning and swelling around the lips, mouth and throat.
Those who have the allergy are also allergic to some pollens — especially birch — and also to some nuts.
All of these contain protein molecules that trigger the misplaced immune response we call an allergic reaction. If the fruit that causes your symptoms is cooked, the protein is inactivated and can no longer trigger the process — you may already have noticed this.

CONTACT DR SCURR

To contact Dr Scurr with a health query, write to him at Good Health, Daily Mail, 2 Derry Street, London W8 5TT or email drmartin@dailymail.co.uk - including contact details.

Dr Scurr cannot enter into personal correspondence.

His replies cannot apply to individual cases and should be taken in a general context.

Always consult your own GP with any health worries.
Although we don’t know why adults suddenly develop allergies, there do seem to be certain times in our life when they are most likely to strike, with one being the menopause.
Oral allergy syndrome is not a medically worrying problem unless the swelling of the tongue or throat is to such an extent that it affects breathing.
Fortunately, this is rare, but if there is a suspicion of this allergy,  detailed investigation by an allergy specialist is essential.
The problem is that, in the NHS, these people are thin on the ground — and you must be cautious about those who work in the alternative health sector, as it is difficult to judge qualifications and expertise. Indeed, there is more anecdote-based nonsense and pseudo-science talked about allergy than almost any other subject in medicine.
Avoidance of foods you have found to be troublesome is a must. If you do eat something that causes a reaction, then wash your mouth out with water and, if available, take an antihistamine like Piriton (chlorpheniramine) to ease the symptoms.
Unfortunately, there is no cure, as therapies that desensitise the mouth to allergic reactions  — as used for allergies such as hay-fever, where tiny amounts of allergens are injected into the body — are not yet available. This means the current strategy is to learn which foods are likely to cause the problem and avoid them.
And so I’m afraid margaritas may truly be a thing of the past in your case; perhaps try switching to champagne cocktails (in moderation, of course).

By the way... Keep taking aspirin, it's a life-saver

Don't give up on it: Aspirin can help heart disease sufferers
Don't give up on it: Aspirin can help heart disease sufferers
Aspirin is never out of the news — just weeks ago I was reflecting on the subject of aspirin having been shown to prevent several common types of cancer when taken in small daily doses over long periods of time.
Now, a new study gives us different but equally important information: heart disease patients who stop taking the aspirin they have been prescribed are at a 60  per  cent risk of a further heart attack.
Patients who are known to have coronary heart disease, and have fatty cholesterol deposits clogging the arteries that supply their heart with oxygen and fuel, are always prescribed aspirin long term. This mini marvel makes the blood less sticky, meaning it is far less likely to clot in the arteries and kill.
The reasons that people stop taking the aspirin are multiple, but it is widely thought they neither realise how important it is, nor the penalties for stopping it. Aspirin seems to be doing nothing — it is so cheap, available and low-tech that it just doesn’t seem important.
So why do patients not follow medical advice correctly? Medics call this particular conundrum ‘patient compliance’.
What research shows is that a positive relationship between the doctor and the patient is the most important factor in improving compliance. When time is taken over discussions during consultations, patients are more likely to learn what is important and stick to advice.
And what is missing these days? Continuity and time: the consequences of ever greater pressure, the need for doctors to do more, see more patients, be ever more ‘efficient’.
Of course, some people stop the aspirin because of side-effects, such as heartburn or even bleeding in the intestine. But then there are strategies to help that — and aspirin is so important it is best not to throw out the baby with the bath water.
The bottom line is that doctors need to be good teachers, friends even, spending time taking care of patients. Then aspirin does not get abandoned, and lives are saved.

Narcoleptic student forced to drop out of university because she kept falling asleep during lectures takes £34,000 compensation claim to court… along with her duvet and pillow

A narcoleptic student who abandoned her degree when she couldn't stay awake during lectures is demanding £34,000 compensation.
Shelley Maxwell, 49, has taken her disability discrimination case against Salford University to the Court of Appeal - and attended the hearing with a duvet and pillows in case she needed a nap.
Mrs Maxwell says the university did not do enough to help her while she studied for a degree in military and international history.
Narcoleptic Shelley Maxwell
Narcoleptic: Shelley Maxwell, pictured arriving at court with a pillow yesterday, claims that Salford University discriminated against her
She suffers from a disorder which means she needs up to 16 hours of sleep every day and is prone to nodding off in the afternoons.
Her problem - described as 'narcoleptic in nature' - meant she could not complete her degree and left the university at the end of her first year in 2005.
 

While her classmates were taking notes during lectures, the mature student was often fast asleep, oblivious to her lecturers' teaching.
She complained that the university's provision of written notes for the lectures she slept through was insufficient support to enable her to take her end-of-year exams.
The university offered to let her restart her course, with her tuition free of charge, but Mrs Maxwell was unhappy and complained to the students' watchdog, the Office of the Independent Adjudicator.
Salford University: Mrs Maxwell claims that the provision of lecture notes was inadequate to enable her to take her exams
Salford University: Mrs Maxwell claims that the provision of lecture notes was inadequate to enable her to take her exams
After an investigation, the OIA recommended that the university pay for Ms Maxwell to restart her first year, give her £2,500 compensation for inconvenience and distress, and to review its procedures in relation to helping disabled students.
But the decision did not go far enough, Mrs Maxwell claimed, because it did not express a view that she was a victim of disability discrimination and left her far short of the £34,000 payout she hoped to receive.
At the High Court last year, Mr Justice Foskett rejected a judicial review challenge to the decision, in which Mrs Maxwell's lawyers argued that the OIA should have recommended compensation at a much higher level.
Today - clutching a pillow - she took her case to the Court of Appeal, where her lawyers began a challenge to the OIA's refusal to make a discrimination finding.
In a case which he says could have wide-ranging effects for other disabled students, Gregory Jones QC said a refusal to express a view on the central issue meant it is possible that universities could get away with discrimination.
'In refusing to express a view about disability discrimination that may have been suffered by a complainant, where its procedure may be the only forum the complaint is likely to be aired in, the OIA may inadvertently be enabling discriminatory behaviour to continue without being exposed as such,' he said.
He added that, if the OIA came to its decision to recommend compensation and a review of procedures based on discrimination, then it should have made that clear.
OIA barrister Sam Grodzinski QC said it had considered the substance of Mrs Maxwell's complaint about how her disability was addressed by the university.
It had taken into account the Disability Discrimination Act and made findings about a failure to provide sufficient assistance, then made recommendations on how to deal with it, he said. It was not obliged to do more.
Speaking outside court, Mrs Maxwell said that, despite getting promising marks for the two essays she wrote during her first term, she felt unable to take the end-of-year exams.
She said she needs at least 12, and up to 16, hours of sleep every day, but knows when she is going to fall asleep and does not do so unexpectedly.
The judges reserved their decision on the appeal until a later date.

Could zinc be a cure for the common cold? Taking supplements could shorten illness length by 40 per cent

it is medicine’s holy grail, eluding doctors and scientists for centuries.
But remarkably, the cure for the common cold could be no more complicated than a mineral supplement.
Taking high doses of zinc can cut the length of colds by almost half, according to research. The evidence emerged from the combined results of 13 trials which tested the ability of zinc lozenges, which dissolve in the mouth and are widely available, to fight off colds.
Atchoo! But zinc supplements could help shorten the symptoms of the common cold
Atchoo! But zinc supplements could help shorten the symptoms of the common cold
Three of the studies showed taking daily doses of zinc acetate higher than 75 milligrams – seven times more than is generally recommended – as soon as symptoms began, shortened colds by an average of 42 per cent.
 

Five others, using other types of zinc salt at doses greater than 75mg, resulted in a 20 per cent reduction. But five studies of doses lower than 75mg showed no benefit at all. 
Zinc supplements can cause side effects such as a bad taste in the mouth, stomach upsets and nausea in some people. But the researchers found no evidence that the lozenges caused any long-term harm. In the EU, the recommended daily dose of zinc is 10mg for adults.
Zinc supplements: The mineral's health benefits have long been known, but its effects on the common cold have not been clear until now
Zinc supplements: The mineral's health benefits have long been known, but its effects on the common cold have not been clear until now
Zinc is important for the immune system and eating too little in the diet is known to increase the risk of infection. The latest findings confirm research at Cardiff University’s Common Cold Centre into whether non-medical remedies are effective.
These studies also showed zinc may shorten the duration of symptoms. More than 200 viruses are capable of causing the common cold, which is why it is almost impossible to gain complete immunity.
Colds strike an average of 930,000 Britons on any day in winter. People typically suffer at least 200 colds over their a lifetime – amounting to around two to three years of coughing and sneezing.
The idea that zinc lozenges might be effective against colds stems from an accidental observation in the early  1980s. Doctors saw that the cold of a three-year-old girl with leukaemia vanished when she dissolved a zinc tablet in her mouth.
Since then a number of studies have looked at zinc’s effects on colds, with inconclusive results.
Pugh
The latest findings, reported in the Open Respiratory Medicine Journal, point to mixed results caused by hugely different doses in the previous studies. The researchers, led by Dr Harri Hemila, of the University of Helsinki in Finland, wrote: ‘Many trials with daily zinc doses of over 75mg have found significant reduction in the duration of colds.
‘Since a large proportion of participants remained without adverse effects, zinc lozenges might be useful as a treatment option for the common cold. More research is needed to find optimal compositions and treatment strategies.’
Zinc deficiency is very common, with less than half of Britain’s population eating even half the recommended daily allowance.
It is not stored in the body, although can be found in tissue and bones. It aids the immune system, helps wounds heal, is important for proper taste and smell, and vital for male fertility. It may slow sight loss caused by age-related macular degeneration.
Rich sources include shellfish, lamb, liver, steak, pumpkin seeds and wholegrains.

doctors soars by 70% in a decade

The number of medicines given out on prescription has jumped almost 70% in the past decade, figures show.
In 2010, 927million prescription items were dispensed in England, up 4.6 per cent on 2009 and 68 per cent on 2000.
For every person in England, an average of 17.8 prescription items were dispensed, compared to 17.1 in 2009 and 11.2 in 2000.
The highest number of drugs dispensed were for the cardiovascular system, while the most expensive bill was for drugs to treat disorders of the central nervous system.
Increase: For every person an average of 17.8 prescription items were dispensed, compared to just 11.2 ten years ago
Increase: For every person an average of 17.8 prescription items were dispensed, compared to just 11.2 ten years ago
The average cost per head was £169 in 2010, compared to £165 in 2009 and £113 in 2000.
High blood pressure and heart failure accounted for a high number of prescriptions, while drugs to treat diabetes were among the most costly.
The overall net ingredient cost of all items dispensed was £8.83billion in 2010, up 4 per cent on the previous year and 58 per cent on 2000.
The average cost per item was £9.53, down from £10.12 in 2000.

There is a huge amount of waste. Up to half of all medicines for long-term conditions are not taken as intended by the prescriber
CHIEF EXECUTIVE OF NATIONAL PHARMACY ASSOCIATION
Today's data, from the NHS Information Centre, relates to prescriptions dispensed by community pharmacists.
Its chief executive, Tim Straughan, said: 'This report shows that on average people in England are receiving more prescription items than 10 years ago, although the average cost of each prescription item has decreased over the same period.
'Prescribing has a significant impact on peoples' lives; and from a financial point of view is of substantial cost to the NHS.
'Today's report is important in giving people and the NHS the information needed to help understand prescribing today and patterns over time.'
Care services minister Paul Burstow said: 'The big rise in prescribing revealed today largely reflects the impact of a growing and ageing population, as well as an increase in the prescribing of preventative medicines, such as low cost statins, for cardiovascular diseases.
'These figures show that the demand for healthcare is increasing. The NHS must adapt and innovate to ensure it is able to meet these demands.
'We are increasing investment in the NHS by £12.5billion but the NHS needs to be smarter with its resources.
'That is why we are continuing to encourage the prescribing of preventative medicines, which help to prevent illness and improve patient outcomes.'
Mike Holden, chief executive of the National Pharmacy Association, said: 'Prescribed medicines represent the largest non-staff element of the NHS budget (approx £9billion per year in England) so it is vital to get value for money from this investment.
'There is a huge amount of waste. Up to half of all medicines for long-term conditions are not taken as intended by the prescriber.
'There is no doubt that much more value for patients and the taxpayer could be extracted from this massive investment by supporting more effective medicines use.
'After all, the least cost-effective medicine is one that is used improperly or not at all.'

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